They started about two weeks ago and are a different type of seizure from what he usually has (he usually has myclonic seizures). The newer episodes are like those of a temporal seizure - he stares off into space. When his name is called he doesn't move. If a hand is run in front of his face, he doesn't blink.
We took him to the neurologist just a few days after they started. The neurologist confirmed that they may indeed be temporal seizures and ordered an EEG. The EEG is scheduled for the end of January.
Since previous EEGs they have found that sedating children alters the brain waves, so Noah will not be sedated when he has the EEG. This is going to be an adventure, folks. I'm skeptical that he will even go to sleep at all during the EEG but trying to not be a negative Nelly about the whole thing so I'd appreciate prayers and positive thoughts.
My word for 2012 was breathe. It was a great word for the year. When I decided on breathe, Noah had just had his first ever (and only!) grand mal seizure and my world had been rocked so breathe felt like a perfect word. And it was a very good word. I repeated it to myself, reflected on it, and used it all through out the entire year.
But in some ways I feel like I just breathed and got through the year. This year, I want to enjoy the year and all the little moments. So my word for 2013 is............
I want to find the joy in the all the moments - good and bad. I do think there are small spots of joy to be found in bad times, you just have to look harder to find them. I also think sometimes joy is a choice - you can choose to see the negative in a situation or you can choose to find the positive, the joyful so I am choosing joy. I'm also reading the 1,000 Gifts Devotional book so I think that will help me find the everyday joy.
And I want to build off of what I learned in 2012. I want to breathe in the situation, breathe in the moments, breathe in my life and then I want to find the joy and breathe in the joy.